By: Pete
I have a rare condition (between 1 in 300k and 1 in 1m) and it is unknown by most non-specialists and is little known by many specialists. I have “fired” 3 specialists and 2 PCPs. Some people, in any...
View ArticleBy: e-Patient Dave
> When I meet someone who is not expert in my condition, > pretends he is, and is dismissive of my knowledge, > I just walk away! Well said – if I read you correctly, the “sin” isn’t not...
View ArticleBy: Peggy
Sometimes there just is not a good “fit” between doctor and patient. If a patient wants to see a different MD at our cancer center they are not discouraged in seeking out a better/different clinician...
View ArticleBy: Winnie Tobin
As my mother would often say, “Better the devil you know,” and, unfortunately, I have sometimes found that experience to be true. We have had differences with my dad’s primary care physician, but were...
View ArticleBy: Wendy Hoechstetter, CAPS
I was abruptly fired once by a doctor – a very prominent female gynecologist in San Francisco. I was in the middle of the madness of papers and contingencies flying back and forth when I was buying my...
View ArticleBy: e-Patient Dave
THAT’s a fascinating twist, Wendy. I sure agree that if the doc had that judgment, she’s a bit crazy! I bet she exaggerated that quite a bit. But still.
View ArticleBy: e-Patient Dave
Winnie, I know what you mean – it’s hard to switch mid-case. I think this is one of the essential differences between healthcare and other industries. If we could be sure a new care team would reliably...
View ArticleBy: Wendy Hoechstetter, CAPS
Yes, she probably did exaggerate, but it left me with no desire to try to work things out just in case.
View ArticleBy: kathy kastner @kathykastner
Thanks Dave, for bringing this forward. Learning lots, as always, from comments. I have two scenarios to share. 1. The rads doc who said, of my decision not to proceed with her recommended course of...
View ArticleBy: Carolyn Thomas
Hi Kathy – you bring up a key point (can we patients also be teachers? Answer: YES!) While empathy (as you demonstrated) is an important way to get a point across, I had some (surprising!) success with...
View ArticleBy: e-Patient Dave
What I like about Peggy’s comment is that it shows LISTENING. Listening to what the patient cares about. And sensitivity to different people’s needs for what care is, at that moment. (Disclosure – I...
View ArticleBy: e-Patient Dave
> What evolved was something I called > “Carolyn’s Top 10 Tips On How to Treat Your Patients”. Well?? You gonna share them?? Sounds like good fodder for our Journal of Participatory Medicine, or...
View ArticleBy: kathy kastner @kathykastner
Thanks Dave..Carolyn, I want to see and share your top 10 list too. [wonder how they line up with Stephen Wilkins (mind the Gap) top 10 – I saw you commented.. but didn’t share your list there, either...
View ArticleBy: David
Pete said “When I meet someone who is not expert in my condition, pretends he is, and is dismissive of my knowledge, I just walk away!” I agree Pete. I used to be blindly trusting of the medical...
View ArticleBy: Carolyn Thomas
Here’s the link, Dave (also embedded in my comment name): http://myheartsisters.org/2009/07/10/open-letter/
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